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  • Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders - Inspire
    The Ehlers-Danlos Syndromes and Related Disorders Support Community connects patients, families, friends and caregivers for knowledge, support and inspiration This community is sponsored by the Ehlers-Danlos Society, an Inspire trusted partner
  • EDS and antibiotics - Ehlers-Danlos Syndromes - Inspire
    Hello Stretchyxtine, Fluoroquinolone antibiotics - Cipro, Levaquin, etc - should be avoided by those with EDS when possible and when there are other antibiotics available You can read of the tendon ruptures and neuropathy they cause in the general population and then consider how our defective connective tissue reacts
  • EDS Specialists Colorado - Ehlers-Danlos Syndromes - Inspire
    Happy Sunday! Can anyone in Colorado recommend the gamut of MDs needed for an EDS patient in Colorado? I'll travel across the State, up or down I
  • 2025 Global Learning Conference - Ehlers-Danlos Syndromes - Inspire
    Join other individuals and families with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) for up to three days of learning, collaboration, and networking The conference theme is "Teamwork", emphasizing the importance of multidisciplinary collaboration in managing EDS and HSD symptoms and comorbidities
  • Physicians in North Carolina - Ehlers-Danlos Syndromes - Inspire
    The Ehlers-Danlos Society's Healthcare Professionals Directory is a great place to start when looking for providers in your area who have experience with EDS and HSD
  • 23 and me Col3A1 - Ehlers-Danlos Syndromes - Inspire
    Hello Getbent, Just be aware that while EDS, Vascular type is caused by a genetic mutation on COL3A1, so are some with EDS, Hypermobility type caused by a different mutation on COL3A1 And then there are also mutations on COL3A1 which are not known to cause any problems at all So having a result that suggests there may be a genetic mutation on COL3A1 does not automatically mean you have VEDS
  • Looking for an EDS Specialist Near Dallas - Inspire
    Hi, does anyone know of a specialist in the DFW area for EDS? Im tired of going to Dr 's who dont know what EDS is!!!!!
  • I found a hypermobile EDS doctor in Oklahoma City
    Fleak_eds Mar 6, 2024 • 9:18 AM Omg I live in OKC and have been looking for one! Thank you so much for this!! Game changer! I have been going to Florida for appts!
  • Got my 23andme. What next? - Ehlers-Danlos Syndromes - Inspire
    Just like EDS, you have to look at expression as well as what other issues they have going on If they have other metabolic issues that can interplay with MTHFR, such as a vWB or other Factor issues, not to mention things like COMT activity, and CBS regulation, then you essentially have a whole other set of things to consider
  • How does eds affect your sinuses? - Ehlers-Danlos Syndromes
    You have EDS and allergies and can get GERD treated there if it has an immune system basis If you have mast cell, you will more than likely have GERD at some point in your life





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